Getting yourself a Personal Health Record is an important step along the way to Dr. Carrie's holy grail...Personal Health Ownership.

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While reading an article for the bleeding disorders community, I came across a resource that I know you will find useful in building a personal health record for your child.

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My daredevil son is about to embark on the trip of his life! Now he wakes everyday to knowing that the wondrous world he had anticipated since he was ten is unfolding the way he has created.

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My son who is active and allergic to antibiotics, latex and a host of other things took a tumble. And I mean a tumble!

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Six steps to a more helpful and complete PHR

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One day Jake, our middle son, got strep throat. Usually, no big deal. Some antibiotics and you’re good to go. Not this time. Jake had a severe allergic reaction to the antibiotic and the next one, and the next, and the next. The whirlwind began.

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 Dennis Quaid produced “Chasing Zero: Winning the War on Healthcare Harm.” The documentary covers why medical errors occur, and what patients can do to prevent them.

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A UK mother is missing her son's PHR because of medical identity theft. Chelsea Herron and her son Bailey had Bailey’s medical information stolen the old-fashioned way - by two criminals on the street.

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Drs. Mark and Scott Blankenburg are in prison. The pediatricians’ patient records are equally inaccessible: according to WKRC Cincinnati, parents can’t obtain their child’s vaccination records in time for fall kindergarten enrollment.

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Has HIPAA created a potentially deadly situation in sports medicine?

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In November 2007, Dennis Quaid’s newborn twins, Zoe Grace and Thomas Boone, nearly died from an overdose of the blood thinner heparin at Cedars-Sinai Medical Center in Los Angeles. Since then, the actor has mounted a crusade against medical errors.

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There’s no set time frame as to when a pediatric patient should begin seeing a general practitioner. Often, teens or pediatricians themselves simply feel that the patient is “too old” to see a children’s doctor.

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I am the mother of a toddler and a kindergartener. I recently started a patient-centric health record, which consists of aggregating documentation and information from several sources of healthcare.

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The American Recovery and Reinvestment Act (ARRA) contains provisions to encourage the meaningful use of electronic medical records technology. Seniors are most likely  to use a PHR, but will this change as Millennials mature and as EHRs become more prevalent?

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Let me admit something up front.  I hate to file.

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As an incoming university freshman, I got my first taste of the real word, and it was bittersweet. My mind was focused on finding classes, highlighting textbooks, and making new friends. Everyone tells you college is hard work and you are going to have to study your butt off. However, no one tells you about all the other stuff, the real world stuff. I didn’t know how to manage my finances, time, and health.

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If you have a child with a health problem or condition, you’re well aware that a trip with the family has to include whatever medications might be needed. You know it’s important to tuck in emergency advice and the doctor’s name and contact numbers, as well.  One thing less commonly included, but should be, even for those with no apparent medical issues, is a travel version of your child’s Personal Health Record. 

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Canadian provinces are moving toward tracking health records electronically. A side benefit for consumers, though, is the ability to put health information in patients’ and caregivers’ hands.

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To Dr. Ted Eytan, PHRs help children and adults achieve their life goals through optimal health.

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Ninety-eight percent of health care providers don’t have a comprehensive electronic health record, which can help multiple doctors save children’s lives.

Di Smalley, CEO of Mercy Health Systems of Oklahoma, relates a story about a child helped by an EHR.

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In less than a decade, technology has made information widely accessible--Information that in years past only a privileged and select few had access to. This has opened the doors to nearly everyone in America to make informed decisions about their health care.

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I have been blessed to be the mom of 3 boys, or should I say 3 young men. Two are in college and one will be a junior in high school. I, like many moms, documented their milestones the first few years of their life in their baby books.

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Last summer was my first experience with sending a child off to college.  As I sat through the college parent orientation, I noticed that not much was mentioned about health care.  My son’s college is a small college and does not have a student health service department.  My anxiety started to grow as I began to think about what will happen if he has to go to the doctor or hospital.

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Maybe you didn’t realize it, but if you keep records of your immunizations, then you’ve actually started a Personal Health Record. And if you’re like many parents I know, you have a file somewhere that you keep these records for yourself and your children.

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